Overview
The life expectancy of people with Down syndrome has doubled over the last 40 years. The number of people with Down syndrome living into adulthood has also increased significantly. In this presentation, Brian Chicoine, MD, will review the health care changes, past and present, that contributed to these changes. He will also describe differences in the prevalence of health conditions in adolescents and adults with Down syndrome compared to those without Down syndrome and discuss how these differences may affect health promotion and health care of people with Down syndrome. Additionally, Dr. Chicoine will describe the effects of bias in health care of people with Down syndrome and provide suggestions for supporting individuals with Down syndrome in receiving high-quality care.
This program is supported by the Down Syndrome Network of Northern Nevada (DSNNN) and the Katerini Zoe Medical Outreach Program.
The DSNNN is a community of families, friends, and individuals committed to providing information, education, and support while raising awareness of Down syndrome in Northern Nevada. Through their work supporting families, a deep bond was formed with the Butler family. In February 2022, after a short battle with leukemia and surrounded by her parents, their precious daughter, Katerini, passed away. To honor her memory, the Butler family established the Katerini Zoe Medical Outreach Program. This program's mission is to support families by collaborating with healthcare providers to enhance family-centered care and deepen understanding of the many aspects of serving patients with Down syndrome.